News about Amber and Me.

Amber had her ph probe done and the result turned out normal. I was devastated. I was hoping this would prove whatever was wrong with her. Apparently she does not have alot of acid in her vomit. So now he thinks she may have non-acid reflux and there is a test, similar to the ph probe, but unfortunately our hospitals don't perform this test. When he called me he said to me "I don't know what's wrong with your daughter, take her to children's"... Another devastating thing for me to hear. For him to just give up, because it's not an easy case!? So now i have to play with the insurance company to pay for me to go outside the network, because the St. John's doctor is referring it! Otherwise I will have one massive bill, I am sure. I know I will get them to, but if not I will pay if it will give me results!!

I cried the full day at work, so frustrated with it all. So lost, not knowing what to do now, so powerless. I have never felt so out of control, all I can do is take it one day at a time and hope that they find a cure! I find myself withdrawing into myself, not really wanting to talk about anything, forcing myself to get thru a day, i do it because i know i have to, but don't want to!! I know it's depression and it sucks!!! I force myself not to overeat, but believe me I could eat and eat and never get full. This is a true test!!


Here's a couple of pics with the ph probe test thing.
The little box had buttons that you had to push, one was for when she felt like she had to vomit or if she vomited. One button was for when ever she ate or drank and then another button to tell it when she was laying down or sitting up.

We decided to make the best out of a bad situation and color the tape. I tried to cheer her up :)

About the only good news that i have to share is that my doctor called me and was so surprised on my blood work...Everything was good. My A1C came down from a 10 to a 6 which is exactly where he wants me...and the one shocking news was that my cholesterol is down to 152 I have never had it under 200 before!!

My doctor said that if the report did not have my name on it, he would think it was another person...He told me whatever your doing keep it up and maybe we can get you off some of these meds!!! woohoo!!!

My husband also got a phone call from the doctor, he warned Frank that if he did not start watching his sugar that he will be put on pills!!! WHAT A SWITCH!!!!